Canadians’ Perspectives on Digital Health Privacy
2022 Data Tables
Survey Topics
Data Tables
This data is available in an accessible format on our detailed visualizations. If data is not available for a question you’re interested in, please contact us.
| Questions | Download Excel |
|---|---|
| Q1: In which province/territory do you currently live? | Download |
| Q2: How would you describe your gender? | Download |
| Q3: What is your age? | Download |
| Q5: In general, how would you rate the quality of healthcare you received in the past 12 months? Please use a scale from 1 to 7, where 1 is poor and 7 is excellent. | Download |
| Q6: How would you rate your level of involvement with how you manage your health in partnership with your healthcare providers? Please use a scale from 1 to 7, where 1 is not at all involved, 7 is extremely involved. | Download |
| Q7: How would you rate your confidence in participating in your care with your healthcare providers? Please use a scale from 1 to 7, where 1 is not at all confident to participate, 7 is extremely confident to participate. | Download |
| Q8: Do you feel confident that you are able to protect your online privacy? Please use a scale from 1 to 4, where 1 is not confident at all and 4 is very confident. | Download |
| Q9: Why do you not feel confident that you are able to protect your online privacy? | Download |
| Q10: Which best describes your attitude toward the privacy of your personal health information? My personal health information can be used by others... | Download |
| Q11: How does your attitude toward the privacy of your personal health information impact your willingness to use digital health tools? | Download |
| Q12: Do you feel your healthcare privacy rights are adequately protected by the law? | Download |
| Q13: Are you aware of any Canadian privacy laws that protect your personal health information? | Download |
| Q14: How well do you know your healthcare privacy rights as outlined in Canadian law? | Download |
| Q15: Have you ever exercised the following patient privacy rights? | Download |
| Q16: Which of the following sources (either online or in person) do you use to find information about your healthcare privacy rights? | Download |
| Q17: Have you, a member of your family, or someone you know ever experienced a breach where your/their personal health information was used inappropriately or released without your/their consent? | Download |
| Q18: In the past 12 months, approximately how many times did you hear about healthcare privacy breaches in Canada as far as you can recall? | Download |
| Q19: Does hearing about privacy breaches negatively affect how you perceive the privacy of your personal health information? | Download |
| Q21 Summary1 - Top 2(6-7): How much trust do you have in the following groups to keep your personal health information safe and secure? Please use a scale from 1 to 7, where 1 is no trust at all, 7 is a great deal of trust, and 4 is a moderate amount of trust. | Download |
| Q21 Summary2 - Middle 3(3-5): How much trust do you have in the following groups to keep your personal health information safe and secure? Please use a scale from 1 to 7, where 1 is no trust at all, 7 is a great deal of trust, and 4 is a moderate amount of trust. | Download |
| Q21 Summary3 - Bottom 2(1-2): How much trust do you have in the following groups to keep your personal health information safe and secure? Please use a scale from 1 to 7, where 1 is no trust at all, 7 is a great deal of trust, and 4 is a moderate amount of trust. | Download |
| Q22 Summary1 - Top 2(6-7): Please rate the degree to which you agree or disagree with the following statements. Please use a 7-point scale where 1 means you strongly disagree, 7 means you strongly agree and 4 means you neither agree or disagree. | Download |
| Q22 Summary2 - Middle 3(3-5): Please rate the degree to which you agree or disagree with the following statements. Please use a 7-point scale where 1 means you strongly disagree, 7 means you strongly agree and 4 means you neither agree or disagree. | Download |
| Q22 Summary3 - Bottom 2(1-2): Please rate the degree to which you agree or disagree with the following statements. Please use a 7-point scale where 1 means you strongly disagree, 7 means you strongly agree and 4 means you neither agree or disagree. | Download |
| Q23 Summary1 - Top 2(6-7): How much trust do you have in the following groups to keep your personal health information safe and secure? Please use a scale from 1 to 7, where 1 is no trust at all, 7 is a great deal of trust, and 4 is a moderate amount of trust. | Download |
| Q23 Summary2 - Middle 3(3-5): How much trust do you have in the following groups to keep your personal health information safe and secure? Please use a scale from 1 to 7, where 1 is no trust at all, 7 is a great deal of trust, and 4 is a moderate amount of trust. | Download |
| Q23 Summary3 - Bottom 2(1-2): How much trust do you have in the following groups to keep your personal health information safe and secure? Please use a scale from 1 to 7, where 1 is no trust at all, 7 is a great deal of trust, and 4 is a moderate amount of trust. | Download |
| Q24: Have you used virtual care with a healthcare provider in the past 12 months? | Download |
| Q25: Which of the following reasons describes why you have not used virtual care in the past 12 months? | Download |
| Q26a: Do you know who provided the virtual care services during your most recent visit? | Download |
| Q26b: As far as you are aware, how was your most recent virtual visit paid for or covered? | Download |
| Q27: Were you asked to provide consent to use virtual care for your most recent virtual care service? | Download |
| Q28: Please describe how you gave your consent at your most recent virtual care consult. | Download |
| Q29: Did you understand what you were consenting to at your most recent virtual care consult? | Download |
| Q31: Which of the following best describes your belief about how personal health information is shared between healthcare organizations, government health agencies and university researchers for health research purposes? My personal health information is... | Download |
| Q32: I would be willing to share my personal health information to... | Download |
| Vignette #1 – Use of PHI by Government Public Health Agency | |
| Q33 - Covid-19 Scenario: What do you think about your personal health information being used for this purpose? | Download |
| Q33 - Rare Disease Scenario: What do you think about your personal health information being used for this purpose? | Download |
| Q34a - Covid-19 Scenario: Which of the following conditions are required for you to consent? (Respondents who are willing/ready to provide their consent to their PHI to be shared) | Download |
| Q34a - Rare Disease Scenario: Which of the following conditions are required for you to consent? (Respondents who are willing/ready to provide their consent to their PHI to be shared) | Download |
| Q34b - Covid-19 Scenario: Which of the following conditions would convince you to allow your personal health information to be shared?(Respondents who would not want their PHI to be used at all/don’t know, and what conditions that would convince them to allow their PHI to be shared) | Download |
| Q34b - Rare Disease Scenario: Which of the following conditions would convince you to allow your personal health information to be shared?(Respondents who would not want their PHI to be used at all/don’t know, and what conditions that would convince them to allow their PHI to be shared) | Download |
| Q35 - Covid-19 Scenario: If the conditions were met, how often would you like to be asked for consent? | Download |
| Q35 - Rare Disease Scenario: If the conditions were met, how often would you like to be asked for consent? | Download |
| Vignette #2 – Use of PHI by Researcher Affiliated with a Pharmaceutical Company | |
| Q33 - Covid-19 Scenario: What do you think about your personal health information being used for this purpose? | Download |
| Q33 - Rare Disease Scenario: What do you think about your personal health information being used for this purpose? | Download |
| Q34a - Covid-19 Scenario: Which of the following conditions are required for you to consent?(Respondents who are willing/ready to provide their consent to their PHI to be shared) | Download |
| Q34a - Rare Disease Scenario: Which of the following conditions are required for you to consent?(Respondents who are willing/ready to provide their consent to their PHI to be shared) | Download |
| Q34b - Covid-19 Scenario: Which of the following conditions would convince you to allow your personal health information to be shared?(Respondents who would not want their PHI to be used at all/don’t know, and what conditions that would convince them to allow their PHI to be shared) | Download |
| Q34b - Rare Disease Scenario: Which of the following conditions would convince you to allow your personal health information to be shared?(Respondents who would not want their PHI to be used at all/don’t know, and what conditions that would convince them to allow their PHI to be shared) | Download |
| Q35 - Covid-19 Scenario: If the conditions were met, how often would you like to be asked for consent? | Download |
| Q35 - Rare Disease Scenario: If the conditions were met, how often would you like to be asked for consent? | Download |
| Q40: Do you have a family doctor or regular place of care, such as a health centre? | Download |
| Q41: Do you have a chronic illness or condition at this time? A chronic illness is a physical or mental condition that has been diagnosed by a medical professional and persists or is expected to persist for six months or more. | Download |
| Q42: Do you provide unpaid support to someone with a diminishing physical ability, a debilitating cognitive or mental condition, or a chronic life-limiting health condition (e.g., taking to them to healthcare appointments, attending appointments, participating in treatment decisions, etc.)? | Download |
| Q43: In the past 12 months, about how many times have you done the following for yourself (either in-person or virtually)? | Download |
| Q44: For each of the following, please indicate if you have done any of these things in the past 12 months. | Download |
| Q45: Are you employed in the healthcare or health services sector? | Download |
| Q46: What is the highest level of education you have obtained? | Download |
| Q47: Please indicate your annual household income (e.g., total income including yourself and all individuals you live with) before taxes in the past year. | Download |
| Q48: Which race category best describes you? | Download |
| Q49: How would you describe the community you live in? | Download |